CEIGR Publications

Estime SR, Lee HH, Jimenez N, Andreae M, Blacksher E, Navarro R. Diversity, Equity, and Inclusion in Anesthesiology. International Anesthesiology Clinics 2021;59(4):81-85.  PMID: 34369397 PMCID: PMC8423145 doi: 10.1097/AIA.0000000000000337

Blacksher E, Hiratsuka VY, Blanchard JW, Lund J, Reedy J, Beans JA, Saunkeah B, Peercy M, Byars C, Yracheta J, Tsosie KS, O’Leary M, Ducheneaux G, Spicer PG. Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: Three Tribal Deliberations in the United States, AJOB Empirical Bioethics 2021;12(3):164-178.

Freedman BI, Burke W, Divers J, Eberhard L, Gadegbeku CA, Gbadegesin R, Hall ME, Jones-Smith T, Knight R, Kopp JB, Kovedsky CP, Norris KC, Olabisi OA, Roberts GV, Sedor JR, Blacksher E. Diagnosis, Education, and Care of Patients with APOL1-Associated Nephropathy: A Delphi Expert Panel Consensus and Systematic Review, Journal of the American Society of Nephrology, April 2021, ASN.20201011399. PMID: 33853887 PMCID: PMC8425659 doi: 10.1681/ASN.2020101399

Blacksher E, Valles S. White Privilege, White Poverty: Reckoning with Class and Race in America, Hastings Center Report 2021;51 (Suppl1):S51-S57. doi: 10.1002/hast.1230

Blanchard, J., & Hiratsuka, V. (2021). Being in Good Community: Engagement in Support of Indigenous Sovereignty. The American Journal of Bioethics, 21(10), 54-56. PMID: 34554065 DOI: 10.1080/15265161.2021.1965243

Haring, R.C., Blanchard, J.W., Korchmaros, J.D., Lund, J.R., Haozous, E.A., Raphaelito, J., Hudson, M. and Tsosie, K.S., 2021. Empowering equitable data use partnerships and indigenous data sovereignties amid pandemic genomics. Frontiers in Public Health, p.1659. PMID: 34858924 doi: 10.3389/fpubh.2021.742467

Claw KG, Dundas N, Parrish MS, Begay RL, Teller TL, Garrison NA, Sage F. Perspectives on Genetic Research: Results from a Survey of Navajo Community Members. Frontiers in Genetics. 2021 Dec; 12:734529. PMID: 34925442 doi: 10.3389/fgene.2021.734529

Blacksher, E., Hiratsuka, V.Y., Blanchard, J.W., Lund, J.R., Reedy, J., Beans, J.A., Saunkeah, B., Peercy, M., Byars, C., Yracheta, J. and Tsosie, K.S., (2021). Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States. AJOB Empirical Bioethics, pp.1-15. doi: 10.1080/23294515.2021.1925775

Saunkeah, BR, Beans, JA, Peercy, M, Hiratsuka, VY, Spicer, PG (2021). Extending Research Protections to Tribal Communities, American Journal of Bioethics, doi: 10.1080/15265161.2020.1865477

Shaw, J.L., Semmens, E., Okihiro, M., Lewis, J.L., Hirschfeld, M., VanWagoner, T.M., Stephens, L., Easa, D., Ross, J.L., Graham, N., Watson, S.E., Szyld, E.G., Dillard, D.A., Pyles, L.A., Darden, P.M., Carlson, J.C., McCulloh, R.J., Snowden, J.N., Adeky, S.H., & Singleton, R. (2021). Best practices for conducting clinical trials with indigenous children in the U.S. American Journal of Public Health. https://doi.org/10.2105/AJPH.2021.306372

Ngure K, Trinidad SB, Beima-Sofie K, Kinuthia J, Matemo D, Kimemia G, Njoroge A, Achiro L, Pintye J, Mugo NR, Bukusi EA, Baeten JM, Heffron R, John-Stewart G, Kelley MC. Perceived social influences on women’s decisions to use medications not studied in pregnancy. A qualitative ethical analysis of preexposure prophylaxis implementation research in Kenya. J of Empirical Research on Human Research Ethics. 2021; 16(3):225-237. DOI: 10.1177/15562646211012296. PMCID: PMC8261769

Lillie KM, Shane A, Jansen KJ, Jansen, KJ, Trinidad SB, Shaw JL. Recovery from alcohol among urban Alaska Native and American Indian people. J Ethn Subst Abuse. 2021 May 25; doi: 10.1080/15332640.2021.1918599. PMCID: PMC8613305.

Burke W, Beans JA, Benally M, Cho MK, Garrison NA, Hiratsuka VY, Hopkins SE, Spicer PG, Tsosie KS, Woodahl EL, Yracheta JM, Thummel K for Participants in the Strengthening Partnerships Meeting. Values and practices to strengthen genetic research partnerships with Indigenous communities. Progress in Community Health Partnerships, in press, accepted Nov 7, 2021.

Trinidad SB, Blacksher E, Woodbury RB, Hopkins SE, Woodahl EL, Burke W, Boyer BB, Hiratsuka VY. Precision medicine Research with American Indian and Alaska Native communities: Results of a Deliberative Engagement with Tribal leaders. Genet Med. 2021 Nov 30;S1098-3600(21)05380-6 (online ahead of print). doi: 10.1016/j.gim.2021.11.003.

Blanchard, J., Hiratsuka, V., Beans, J. A., Lund, J., Saunkeah, B., Yracheta, J., Spicer, P., Woodbury, B., Blacksher, E., Peercy, M., Ketchum, S., Byars, C., (2020). Power Sharing, Capacity Building, and Evolving Roles in ELSI: The Center for the Ethics of Indigenous Genomic Research. Collaborations: A Journal of Community-based Research and Practice, 3(1), 18. doi: http://doi.org/10.33596/coll.71

Woodbury, R.B., Beans, J.A., Wark, K.A., Spicer, P. & Hiratsuka, V.Y. Community Perspectives on Communicating About Precision Medicine in an Alaska Native Tribal Health Care System. Frontiers in Communication 5(2020). doi: https://doi.org/10.3389/fcomm.2020.00070

Beans JA, Woodbury RB, Wark KA, Hiratsuka VY, Spicer P. Perspectives on Precision Medicine in a Tribally Managed Primary Care Setting. AJOB Empirical Bioethics. 2020 Oct-Dec;11(4):246-256. doi: 10.1080/23294515.2020.1817172. Epub 2020 Sep 17. PMID: 32940567; PMCID: PMC7606746.

Hiratsuka VY, Hahn MJ, Woodbury RB, Hull SC, Wilson DR, Bonham VL, Dillard DA; Alaska Native Genomics Research Workshop Group, Avey JP, Beckel-Mitchener AC, Blome J, Claw K, Ferucci ED, Gachupin FC, Ghazarian A, Hindorff L, Jooma S, Trinidad SB, Troyer J, Walajahi H. Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers. Genetics in Medicine. 2020 Dec;22(12):1935-1943. doi: 10.1038/s41436-020-0926-y. Epub 2020 Aug 25. PMID: 32839571; PMCID: PMC7708301.

Reedy, J., Orr, R., Spicer, P. Blanchard, JW, Hiratsuka, VY, Ketchum, TS, Saunkeah, BS, Wark, K., & Woodbury, RB. Deliberative democracy and historical perspectives on American Indian/Alaska native political decision-making practices. Humanities Social Sciences Communications 7, 16 (2020). doi:https://doi.org/10.1057/s41599-020-0506-4

Begay RL, Garrison NA, Sage F, Bauer M, Knoki-Wilson U, Begay DH, Becenti-Pigman B, Claw KG. Weaving the Strands of Life (Iiná Bitł'ool): History of Genetic Research Involving Navajo People. Human Biology. 2020 Jul 9;91(3):189-208. doi: 10.13110/humanbiology.91.3.04. PMID: 32549035.

Reedy J, Blanchard JW, Lund JR, Saunkeah B, Peercy MT, Byars C, Spicer PG, Blacksher E. (2020). Deliberations about Genomic Research and Biobanks with Citizens of Chickasaw Nation. Front. Genet. 11:466. doi:10.3389/fgene.2020.00466 eCollection 2020. Pubmed PMID: 32477408; PubMed Central PMCID: PMC7240027.

Hiratsuka VY, Beans JA, Blanchard JW, Reedy J, Blacksher E, Lund JR, Spicer PG. An Alaska Native community's views on genetic research, testing, and return of results: Results from a public deliberation. PLoS One. 2020;15(3):e0229540. doi: 10.1371/journal.pone.0229540. eCollection 2020. PubMed PMID: 32176704.

Lewis CM Jr, McCall LI, Sharp RR, Spicer PG. Ethical priority of the most actionable system of biomolecules: the metabolome. American Journal of Physical Anthropology. 2020 Feb;171(2):177-181. doi: 10.1002/ajpa.23943. Epub 2019 Oct 23. PMID: 31643083; PMCID: PMC7003909.

Woodbury RB, Beans JA, Hiratsuka VY, Burke W. (2019). Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review. Front Genet. 10:942. doi:10.3389/fgene.2019.00942. eCollection 2019. PubMed PMID: 31649725; PubMed Central PMCID: PMC6796238.

Woodbury RB, Ketchum S, Hiratsuka VY, Spicer, P. (2019). Health-Related Participatory Research in American Indian and Alaska Native Communities: A Scoping Review. International Journal on Environmental and Public Health Research. 16(16), 2969. doi: 10.3390/ijerph16162969. PubMed PMID: 31426579. PubMed Central PMCID: PMC6719130

Hiratsuka VY, Beans JA, Reedy J, Yracheta JM, Peercy MT, Saunkeah B, Woodbury RB, O'Leary M, Spicer PG. (2019). Fostering Ethical, Legal, and Social Implications Research in Tribal Communities: The Center for the Ethics of Indigenous Genomic Research. Journal of Empirical Research on Human Research Ethics. Sep 9; 1556264619872640. doi: 10.1177/1556264619872640. [Epub ahead of print] PubMed PMID: 31496352. PubMed Central PMCID: PMC7061084

Beans JA, Saunkeah B, Brian Woodbury R, Ketchum TS, Spicer PG, Hiratsuka VY. (2019). Community Protections in American Indian and Alaska Native Participatory Research-A Scoping Review. Social Sciences (Basel). Apr;8(4). doi: 10.3390/socsci8040127. Epub 2019 Apr 20. PubMed PMID: 31463160; PubMed Central PMCID: PMC6713452.

Blanchard JW, Outram S, Tallbull G, Royal CM. (2019). “We don’t need a swab in our mouth to prove who we are”: Identity, Resistance and Adaptation of Genetic Ancestry Testing among Native American Communities. Current Anthropology, Oct;60(5). doi: 10.1086/705483

Tsosie KS, Yracheta JM, and Dickerson D. (2019). Overvaluing individual consent ignores risk to tribal participants. Nature Reviews Genetics. Sep;20(9): 497-498. doi:10.1038/s41576-019-0161-z. PubMed PMID: 3130820

Ketchum S and Meyers R. (2018). Recognizing and Respecting Tribal IRBs. Anthropology News, 59: e100-e103. doi:10.1111/AN.908

Woodbury RB, Hiratsuka VY, Spicer PG. Ethics and the Management of Genomic Summary Results: A Commentary on the NIH’s Proposed Data-Sharing Policy. To be submitted to Journal of Law and Medicine.   

Blacksher E, Hiratsuka VY, Blanchard JW, Yracheta J, Saunkeah B, Lund J, Reedy J, Beans JA, Spicer PG. Deliberations with American Indian and Alaska Native people about the ethics of genomics: three tribal deliberations in the United States. Submitted to American Journal of Bioethics Empirical Bioethics.

Beans JA, Trinidad SB, Blacksher E, Hiratsuka VY, Spicer PG, Woodahl E, Boyer B, Lewis C, Gaffney P, Garrison N, Burke W. Communicating precision medicine research: multidisciplinary teams and diverse communities. To be submitted to Public Health Genomics.

Burke W, Beans JA, Benally M, Cho M, Garrison N, Hiratsuka VY, Hopkins S, Spicer P, Tsosie KS, Woodahl EL, Yracheta JM, Thummel K. Values and Practices to Strengthen Genetic Research Partnerships with Indigenous Communities. To be submitted to Ethnicity and Disease.